Advent #23: mRNA - Magic?
Research and science save lives– and make possible what previously seemed unattainable: the pandemic is impressive proof of this. Because...
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AN ADVENT CALENDAR OF A SOMETHING DIFFERENT KIND
Every day there will be positive, encouraging, unexpected but always hope-giving things - initially increasingly from the Alström initiative, and then increasingly from society, from science; from all areas that give us hope and encourage us.
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Advent #21: ++ Raffle ++ What does courage mean to you?
In the last 20 days, from the perspective of the Alström Initiative, we have shown topics that give us courage – be it people whose...
Advent #20: Die "People Bude"
May we introduce: Proxenos, the 'People Bude' with their heart in the right place! The Proxenos team is supporting the Alström Initiative...
Advent #19: 4. Advent
The Alstroem Initiative treats itself and all of us to a contemplative and quiet 4. Advent! # BECAUSE WE CAN
Advent #18: Economics and Alstroem
The Alstroem Initiative website states: "Rare diseases are actually 'simple' diseases! Compared to other diseases such as.B Alzheimer's...
Advent #17: Corona vs. Alstroem?
In the case of rare diseases – especially those that have not yet been researched – the smallest (medical) interventions can have...
Advent #16: Ben's Art: The auction!
The time has come! As recently announced, there are original pictures of Ben to be auctioned for the first time! 'Rainbow'and 'Highway'...
Advent #15: Scott Dorfman - Just do it!
Scott Dorfman was the founder, chairman and CEO of NASDAQ-listed Innotrac Corporation, which later merged with eBay Enterprises to form...
Advent #14: Ben's Art - a project of the heart
Small successes and the recognition of one's own actions contribute significantly to the development of a healthy self-esteem and...
Advent #13: "Would you have thought that..."?
We asked very different people - more or less spontaneously - to give examples from the category "I would never have thought that..."....
Advent #11: CAR-T: Revolution in cancer medicine
CAR-T stands for chimeric antigen receptor T cells – but no one has to remember that. Rather, what is important is that behind the four...
Advent #10: Donations - first insights
A very important topic for the Alström initiative are donations – tangible, but also intangible. This is the only way to achieve the...
Advent #9: What an encouragement!
The Care for Rare Foundation, a foundation for children with rare diseases, and the Alström Initiative, have signed a Memorandum of...
Advent #7: Patient organisation
The Alstroem initiative aims to create structural improvements for the care of people living with rare diseases and to support research...
Advent #6: Happy....!
The advent calendar is entitled #Because We Can – and is intended to show positive and encouraging topics from the Alström initiative and...
Advent #5: SMA drug - a miracle?
There are diseases that are considered difficult or untreatable. Like Alström syndrome. Until recently, this also applied to spinal...
Advent #4: The target of the Initiative
This initiative aims to establish a central hub ('Center of Excellence') in Germany for Patients with Alstroem Syndrome (and even other...
Advent #3: Day of People with Disabilities
On the 'International Day of People with Disabilities' some thoughts that could be quite demanding to read - which seems appropriate...
Advent #2: Pioneers - Alström UK
One of the first supporters of the Alström Initiative was the organization ASUK – Alström Syndrome UK. ASUK was founded by parents in...
Advent #1: Review
Before looking ahead, we take a look back on the last few months in a short - personal - review on how this initiative came about. After...
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